Hpv oral cancer

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Hpv oral cancer

by Miryum on Mon Aug 14, 2017 12:41 AM

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Has anyone been diagnosed with Hpv Oral cancer? I have a biopsy out for testing and am waiting results. I was hoping to talk to someone who's beefing through this.

RE: Hpv oral cancer

by MarinS on Thu Aug 17, 2017 02:33 PM

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Many cancers under the catch-all category of Head and Neck Cancer, are HPV-driven and often that indicates that it is more responsive to treatment. But maybe you should wait until you have an actual diagnosis before scaring yourself by reading of worst-case scenarios, etc. If you actually do have HNC that was caused by the HPV virus, chances are good that your doctors will prescribe directed radiation and, possibly, chemotherapy intended to boost the effectiveness of the radiation. This is often a good and effective treatment. But all cases are unique and, so, treatments differ. I wish you the best on your journey. Hang in there!

RE: Hpv oral cancer

by Diamond_David on Thu Aug 17, 2017 03:05 PM

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On Aug 14, 2017 12:41 AM Miryum wrote:

Has anyone been diagnosed with Hpv Oral cancer? I have a biopsy out for testing and am waiting results. I was hoping to talk to someone who's beefing through this.

You didn't mention where you cancer might be in your mouth

I had tonsil cancer, jumped to lymph node. they removed my tonsils (age 59) and 1 lymph node. 

then 7 weeks, once a week of chemo, 7 weeks, 5 days a week of radiation to neck.

Its teh worse treatment, 90% curable. Please ost more, MANY here an share, scary yes, but you'll make it through, let us know

RE: Hpv oral cancer

by oxfordsquare on Thu Aug 17, 2017 06:09 PM

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On Aug 14, 2017 12:41 AM Miryum wrote:

Has anyone been diagnosed with Hpv Oral cancer? I have a biopsy out for testing and am waiting results. I was hoping to talk to someone who's beefing through this.

I am 10 months since my last treatments. The tumor has been completely vanquished. All side effects have been eliminated except salivation and swallowing.  Post chemo & radiation I went through swallow therapy and continue to do exercises.  I had a feeding tube but it fell out 3 months ago so I decided to manage without it. My diet is very limited and still includes special nutrition shakes with ice cream. I still can't eat beef, chicken, or pork, breads, etc. I tried acupuncture and special herbs and am taking Evoxac but my salivation is still minimal.

RE: Hpv oral cancer

by oxfordsquare on Thu Aug 17, 2017 06:27 PM

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Added Background: Mine was HPV 16 tonsillar mass. Squamous cell carcinoma.  Stage 4 since a lymph node was adjacent.  My tonsils were removed when I was a child. I am not a smoker.  I am now 70.  Both sides were treated with 35 radiation treatments and 7 chemo sessions. Since the treatments started a year ago I have used Prevident toothpaste (high dose flourise). I can't swallow vitamins so I use Centrum Liquid. After treatment I had to be careflighted to the hospital because my blood glucose jumped up to 933 we think from all the sugar in Ensure Enlive. This is now normal after I switched to Nestle Health Source Diabetsource AC. Complete Nutrition. I also use a sleep mask to keep my mouth closed which helps with the dry mouth. 

RE: Hpv oral cancer

by Sdurnell on Thu Aug 17, 2017 06:37 PM

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Miryum,

Many of the folks in the Head and Neck cancer section here have dealt or are dealing with HPV-related tumors.  As others have said, this marker means that the cancer is more amenable to treatment, and may also mean that you can go with less aggressive treatment than you'd have if it were tobacco related.

I am going on seven years out of treatment and doing fine.  The radiation is horrible, but very survivable, and also has a high success rate.

All the best to you,

Susan

RE: Hpv oral cancer

by Diamond_David on Thu Aug 17, 2017 07:59 PM

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On Aug 17, 2017 6:27 PM oxfordsquare wrote:

Added Background: Mine was HPV 16 tonsillar mass. Squamous cell carcinoma.  Stage 4 since a lymph node was adjacent.  My tonsils were removed when I was a child. I am not a smoker.  I am now 70.  Both sides were treated with 35 radiation treatments and 7 chemo sessions. Since the treatments started a year ago I have used Prevident toothpaste (high dose flourise). I can't swallow vitamins so I use Centrum Liquid. After treatment I had to be careflighted to the hospital because my blood glucose jumped up to 933 we think from all the sugar in Ensure Enlive. This is now normal after I switched to Nestle Health Source Diabetsource AC. Complete Nutrition. I also use a sleep mask to keep my mouth closed which helps with the dry mouth. 

Hey oxford square!

" also use a sleep mask to keep my mouth closed which helps with the dry mouth. "

I found this. I small apserin size pill, push at night up into your pallet of mouth It forces your mouth to make moisture, cehap works, in AM I use a wet kleenx and wipe it away. On Amazon:called ORAMOIST $6.00 a box:
https://www.amazon.com/gp/product/B012IUH1RO/ref=oh_aui_deta

RE: Hpv oral cancer

by JWoody57 on Thu Aug 17, 2017 09:11 PM

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On Aug 14, 2017 12:41 AM Miryum wrote:

Has anyone been diagnosed with Hpv Oral cancer? I have a biopsy out for testing and am waiting results. I was hoping to talk to someone who's beefing through this.
I too am newly diagnosed with hpv bot cancer. Am scheduled for tors surgery on 8/30/17. I would also like to have someone to share this journey with- share support and express thoughts and concerns. Wishing you all the best btw I am in Ohio and having treatment at OSU James cancer hospital. Best wishes to you on this challenge

RE: Hpv oral cancer

by oxfordsquare on Thu Aug 17, 2017 11:29 PM

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On Aug 17, 2017 6:37 PM Sdurnell wrote:

Miryum,

Many of the folks in the Head and Neck cancer section here have dealt or are dealing with HPV-related tumors.  As others have said, this marker means that the cancer is more amenable to treatment, and may also mean that you can go with less aggressive treatment than you'd have if it were tobacco related.

I am going on seven years out of treatment and doing fine.  The radiation is horrible, but very survivable, and also has a high success rate.

All the best to you,

Susan

Susan, did your salivation return and how long after the last treatment? I was treated on both tonsil areas.

RE: Hpv oral cancer

by JWoody57 on Sat Aug 19, 2017 01:32 PM

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On Aug 17, 2017 11:29 PM oxfordsquare wrote:

On Aug 17, 2017 6:37 PM Sdurnell wrote:

Miryum,

Many of the folks in the Head and Neck cancer section here have dealt or are dealing with HPV-related tumors.  As others have said, this marker means that the cancer is more amenable to treatment, and may also mean that you can go with less aggressive treatment than you'd have if it were tobacco related.

I am going on seven years out of treatment and doing fine.  The radiation is horrible, but very survivable, and also has a high success rate.

All the best to you,

Susan

Susan, did your salivation return and how long after the last treatment? I was treated on both tonsil areas.

That is positive news and thank you for sharing. Wishing you continued good news. JWoody
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