ENT says Lymphoma B cell

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ENT says Lymphoma B cell

by buddylife on Thu Aug 17, 2017 02:01 AM

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Went to ent for tonsillitis. Tonsil seemed to swell after I quit smoking. Antibiotics helped but ent pushed for more tests. Did a punch tonsil biopsy last week and today he called to tell me the pathologist thinks I have Type B Lymphoma. Pathologist hasn’t determined the actual type of Type B Lymphoma, but I should have those results tomorrow8/17/2017.

 I have one swollen left neck node and one right armpit node. I have no other symptoms except that I felt flu like symptoms when I had tonsillitis. Flu like symptoms disappeared once I was on antibiotics.

 Im beyond devastated right now. I don’t even know how to be from moment to moment.

 I researched on line and found some reports of false positive lymphoma B due to auto immune disorders that have cell activity that mimic lymphoma such as Epstein Bar Virus (EBV) or more plainly known as mono.

 here is a medical article that talks about lymphoma mis-diagnosishttp://theoncologist.alphamedpress.org/content/9/4/

 I asked the ENT if there is any way I do not have Lymphoma and he said likely not ? Wouldn’t he at least consider the possibility of it being mono?

 Has any one experienced these kinds of results. How can a pathologist confirm lymphoma B, yet not be sure what kind it is? Has anyone been initially been diagnosed with lymphoma and found out it was actually mono or another immune disorder that mimics lymphoma?

 I don’t want to be dramatic here, but my head is basically exploding right now. I know many of you are cancer survivors who endured treatments of great severity and words cant describe the amount of respect I have for each and every one of you. I just don’t think I have it in me to endure this diagnosis, let alone treatment. 

RE: ENT says Lymphoma B cell

by StenE on Thu Aug 17, 2017 04:00 AM

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Hi buddylife,

I am sorry that you suffer so much and that your are extremely anxious. Try to wait a little and see results of biopsy and further investigations.

If you have lymphoma, it is of course a serious disease, but it is often curable.

I had PCNSL, primary central nervous system lymphoma, a brain tumour, in 2012 at the age of 68. I got the toughest treatment (although a bit too old for it, but fit) high dose chemo and autologous stem cell transplant, and the tumour vanished and has not returned. I was weak for 6 months, but now I am quite fit and I feel fine. Life is good to me.

Good luck to you!

Sten

RE: ENT says Lymphoma B cell

by buddylife on Thu Aug 17, 2017 05:41 PM

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As im waiting im, and (i suppose) holding onto hope this is a mis-diagnosis, im just wondering if anyone has had any experience on being told they have lymphoma b, but later found it was a mis-diagnosed and was actually only EBV, mono or some other auto immune issue.

Im problably in denial and gasping at straws, but it would be helpful to know.

RE: ENT says Lymphoma B cell

by buddylife on Thu Aug 17, 2017 10:11 PM

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Folks im giong f-ing crazy waiting for the results. I know many of you have been through treatment and and are on the other side....but im the guy who just found out he has cancer less than 24 hours ago and is now about to see the ENT to get the results of "what" type of Lymphoma it is.

Anyone at all ? Did I say something to turn off potential responders?

RE: ENT says Lymphoma B cell

by buddylife on Sat Aug 19, 2017 07:24 PM

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I have now been diagnosed with lymphoma with sub type being either mantle or large cell b. It is still unclear what the subtype is. A fish test is being done to determine.

I reached out and shared my diagnosis with 2 of my closest freinds who basically reacted very nonchalently, one laughed then turned the conversation to be about them, and the other listened for all of a minute before letting me know they were on their way to home depot. 

Part of my fear in all of this is being alone and apparently having the worst friends of all time. I have no family. I have my dog and thats about it.

I have an oncologic app this tue and right now and every minute since I found out, I am having mini melt downs. Im completely not present, my dog knows something is wrong because daddy is basically in outter space. Im trying to work a very stressful job this weekend and my heart is in non of it.

I need support and I have no idea where to even begin. Any advise would be helpful.

I continue to write here even tho Ive had a grand total of one responce. I do look at other similair threads who seemingly have 89 responses to a situation alot less specific to mine (swollen tonsil freaking out???), who is posted by a "woman of faith." I am not a woman, nor am i a person of a great deal of faith....does that mean I am somehow not worthy of support?

RE: ENT says Lymphoma B cell

by Fryer65 on Mon Aug 21, 2017 05:39 PM

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Your not alone, have mantel B myself. I was told over the phone by my ENT doc who removed my lump on the back of neck. It was 4:28 on a Tuesday afternoon. I just sat at my desk and watch my employees leave one by one at 4:30. I googled it and sat and sat for about 1/2 hr. Like had 100lb bag of sand on my lap.

Your friends probaly didn't know what it is exactly. I know my wife wasn't sure about it when I told her. You mostly hear a organ or part the body attached to the word cancer.

I made of appiontment for a PET scan and after oncologist told me stage 4. Now 200lbs of sand landed on me. Then he said its a slow growth at 25%. We can treat this! Had 2nd pet scan after 3rd.Things are looking good. So 5 treatments of R chop done, doing 6th next month. Then 3rd pet scan in October. Things are looking brighter now.

Read up on foods to eat and avoid.Things you should do while you get chemo, things to avoid also.

Throttle up!

RE: ENT says Lymphoma B cell

by wilsonsmith on Mon Sep 04, 2017 07:55 AM

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am sorry that you suffer so much and that your are extremely anxious. Try to wait a little and see results of biopsy and further investigations.

[url=http://abc.com]abc[/url]

RE: ENT says Lymphoma B cell

by Sierrajustice22 on Sat Apr 25, 2020 05:58 AM

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On Aug 19, 2017 7:24 PM buddylife wrote:

I have now been diagnosed with lymphoma with sub type being either mantle or large cell b. It is still unclear what the subtype is. A fish test is being done to determine.

I reached out and shared my diagnosis with 2 of my closest freinds who basically reacted very nonchalently, one laughed then turned the conversation to be about them, and the other listened for all of a minute before letting me know they were on their way to home depot. 

Part of my fear in all of this is being alone and apparently having the worst friends of all time. I have no family. I have my dog and thats about it.

I have an oncologic app this tue and right now and every minute since I found out, I am having mini melt downs. Im completely not present, my dog knows something is wrong because daddy is basically in outter space. Im trying to work a very stressful job this weekend and my heart is in non of it.

I need support and I have no idea where to even begin. Any advise would be helpful.

I continue to write here even tho Ive had a grand total of one responce. I do look at other similair threads who seemingly have 89 responses to a situation alot less specific to mine (swollen tonsil freaking out???), who is posted by a "woman of faith." I am not a woman, nor am i a person of a great deal of faith....does that mean I am somehow not worthy of support?

HEY, im Sierra, im 40, alone, well yes, I am. People are taking advantage of.my.sickne ss!

Seriously I have lymphoma in chest fromt.of.heart , was 4.3 cm few months ago. I KNEW WHEN I started.gettin g infections amd my.energy went dow. Something was.not.right . went.to so.many doctors! Well, im devastated,  im scared, and.no ,.im just ready to go! I cant.live like this, have to depend on others but not dependent! They rob me, do.everyt hing

 I.cant believe it! Also have HEART DISEASE and cirrous of the liver.  Ra. Im dying. I hate this! My moods nerves, thinking is so wild!@

RE: ENT says Lymphoma B cell

by Sierrajustice22 on Sat Apr 25, 2020 06:03 AM

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On Apr 25, 2020 5:58 AM Sierrajustice22 wrote:

On Aug 19, 2017 7:24 PM buddylife wrote:

I have now been diagnosed with lymphoma with sub type being either mantle or large cell b. It is still unclear what the subtype is. A fish test is being done to determine.

I reached out and shared my diagnosis with 2 of my closest freinds who basically reacted very nonchalently, one laughed then turned the conversation to be about them, and the other listened for all of a minute before letting me know they were on their way to home depot. 

Part of my fear in all of this is being alone and apparently having the worst friends of all.time . I have no family. I have my dog and thats about it.

I have an oncologic app this tue and right now and every minute since I found out, I am having mini melt downs. Im completely not present, my dog knows something is wrong because daddy is basically in outter space. Im trying to work a very stressful job this weekend and my heart is in non of it.

I need support and I have no idea where to even begin. Any advise would be helpful.

I continue to write here even tho Ive had a grand total of one responce. I do look at other similair threads who seemingly have 89 responses to a situation alot less specific to mine (swollen tonsil freaking out???), who is posted by a "woman of faith." I am not a woman, nor am i a person of a great deal of faith....does that mean I am somehow not worthy of support?

HEY, im Sierra, im 40, alone, well yes, I am. People are taking advantage of.my.sickne "" target="_blank" rel="nofollow">http://of.my.sickne " target="_blank" rel="nofollow">of.my.sickne ss!

Seriously I have lymphoma in chest fromt.of.heart "" target="_blank" rel="nofollow">http://fromt.of.heart " target="_blank" rel="nofollow">fromt.of.heart , was 4.3 cm few months ago. I KNEW WHEN I started.gettin "" target="_blank" rel="nofollow">http://started.gettin " target="_blank" rel="nofollow">started.gettin g infections amd my.energy "" target="_blank" rel="nofollow">http://my.energy " target="_blank" rel="nofollow">my.energy went dow. Something was.not.right "" target="_blank" rel="nofollow">http://was.not.right " target="_blank" rel="nofollow">was.not.right . went.to "" target="_blank" rel="nofollow">http://went.to " target="_blank" rel="nofollow">went.to so.many "" target="_blank" rel="nofollow">http://so.many " target="_blank" rel="nofollow">so.many doctors! Well, im devastated,  im scared, and.no "" target="_blank" rel="nofollow">http://and.no " target="_blank" rel="nofollow">and.no ,.im just ready to go! I cant.live " target="_blank" rel="nofollow">cant.live "" target="_blank" rel="nofollow">http://cant.live " target="_blank" rel="nofollow">cant.live " target="_blank" rel="nofollow">cant.live " target="_blank" rel="nofollow">cant.live like this, have to depend on others but not dependent! They rob me, do.everyt "" target="_blank" rel="nofollow">http://do.everyt " target="_blank" rel="nofollow">do.everyt hing

 I.cant believe it! Also have HEART DISEASE and cirrous of the liver.  Ra. Im dying. I hate this! My moods nerves, thinking is so wild!@

Also, im soooo sick all.time ! Cant do.anythi ng! I seeat profusely if do.any.kind.of.activi ty. its horrible,  dizzy, hurtimg everywhere, my.chest swells,.stomach swells hurts. Now,  I bend over the water in my stomach comes out! Its sad. I dont want to have to deal with it.any worse, barely eat! For.6 months now. I drink ensures. Today and yesterday wasnt able to though. I  have my CELEBRATION OF Life planned and.no w I just want to.move on, I cant.live " target="_blank" rel="nofollow">cant.live like this!! So emotionally distraught! Its sad

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