Confused and Scared Results not helpful

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Confused and Scared Results not helpful

by ConfusedScared on Wed Jul 25, 2018 12:24 AM

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I have been sick for a couple of years and test after test has been either negative or inconclusive.  Approximately a year ago I noticed a lump in the right side of my neck but ignored it thinking that after being sick and hoping for answers and treatment to make my life more normal, that maybe I was starting to feel things that weren't there.

The lump stayed but my symptoms improved after changing my diet and increasing my suppliments, so I thought nothing of it again until approximately 3 months ago when that lump felt larger and another appeard just above it behind my right ear.  Then another and another till there were 5 all on the right side.

I went to my doctor who ordered a soft tissue CT which showed enlarged lymph nodes with possible malignancy.  He then ordered a needle core biopsy of the largest lymph which then came back with "Histiocytosis or histiocytic aggregates."  My primary put me on an antibiotic and gave me a referral to ENT stating that he was unsure what that meant and told me I needed to see the ENT.  I obviously need a new primary care doctor but plan on going through with the referral but in the mean time I am left unknowing, confused and scared.  All my research shows it to be a rare cancer but without confirmation I am still left unknowing.  I know not to believe everything I read on the internet but was hoping that someone may have had this same result or similar and could give me some hope to ease my mind till my next appointment.....My symptoms fit the possible diagnosis but they also fit other possible diagnosis.

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