Post Whipple Surgery - Pain

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RE: Post Whipple Surgery - Pain

by MisterMet on Thu Jun 13, 2019 06:08 PM

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I have suffered with this since my 2009 Whipple. First I tried journaling everything I ate and amount of activity I had for 2 years. Results inconclusive. Next I had every possible test available. Again, results inconclusive. Lastly, I worked with arguably the foremost Dr. for Integrative Medicine, he was the keynote speaker at the world conference in Germany in the last few years. After 2 years of intensive work and a small fortune spent on acupuncture, reiki, supplements, dietary assistance, you name it....he determined that narcotic products are the only course of action. I worked full time from home through my yearlong treatments and tried very mild exercise program. After 14 total hospital trips. Anywhere from overnight to a week, the Good Lord gave me enough signs and messages that convinced me to enter into a retirement disability program. It was painful on every emotional level as I had a great IT Management position, had a very sizeable staff of wonderful people that loved and supports me and just before the cancer, was told that I was being groomed for a position that I thought would only come about in my dreams. It wasn’t until someone in a leadership position that I thought would never take the time to have a heart to heart talk with me, did just that and my life has improved greatly. Haven’t been hospitalized once since I retired. Currently work with a pain management Dr. , do still have occasional attacks but now I can rest up, take my medication and a couple days later, I’m back on the beam. In closing I’m grateful that through it all, my wife and I get to go from our home in the frozen tundra of upstate NY to Spring Training in Florida every year, numerous trips to the 4 corner region of America, a coastal weeklong jazz cruise and more fun cultural trips into NYC than I could ever count.

RE: Post Whipple Surgery - Pain

by denver88 on Fri Jun 14, 2019 12:46 PM

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glad to hear your story of success but let me ask you to summarize the message i think you are trying to convey:  stress from the job and cancer was the root of the pain problem and as the cancer stablized and you quit the job relief was on the way?

RE: Post Whipple Surgery - Pain

by denver88 on Fri Jun 14, 2019 12:57 PM

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Let me speculate on the cause of pain and agree with another person who responded.  Gas build-up can cause pain, at times crippling pain.  I tried to, with some success, to mitigate gas build-up and pain via diet (cheese, garden greens, beans of course, wheat bread, dairy, etc.).  I've found white bread, peanut butter, tea, eggs have mixed results but leave out the butter/oil when pan frying.  I also drink a lot of coffee, not all coffee had gone down well, but find the right one and that may help.  I also eat a lot of pineapple and non-dairy frozen treats.  May not sound nutritious but supplement with a multi-vitamin.  I also find, if you can, exercise to be healthful, moderate workouts but daily or just get out and walk if you can.  Hang in there

RE: Post Whipple Surgery - Pain

by longliveliver on Thu Jun 20, 2019 09:13 PM

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I had Whipple surgery in August of 2017.  I had a verticle incision from just below my sternum to just above my navel. After the incision healed, I seldom experienced much pain or tenderness, and I attribute a lot of that to the skill of my surgeon, but one thing I must absolutely avoid is becoming constipated.  The resulting abdominal pain can be hair-raising. 

I never take conventional laxatives.  Two or three stewed prunes at bedtime are a better alternative.  Recently, after supper I have been eating about 6 oz of plain nonfat yogurt with a teaspoon of blackstrap molasses stirred in.  I'm convinced these methods are less stressful for the gut, and when gut tissue gets stretched the pain is horrible.

I was really frightened by descriptions of Whipple pain before I had surgery, but I'm here to say it doesn't always happen.  I eat pretty much whatever I want (luckily what I want is healthy, wholesome, natural foods, lots of fruit and vegetables, and very little meat), but if something causes any problem I don't eat it again.  I can't predict what is going to be wrong for me, so I just have to pay attention.

I know that I have been lucky to avoid Whipple pain, and my sympathy and good wishes  go out to those who experience it.

RE: Post Whipple Surgery - Pain

by denver88 on Fri Jun 21, 2019 04:44 PM

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glad to hear your successful Whipple story.  i can also lay claim to your experience and recovery and be thankful things are going fine.  too often folks have bad experiences and related injuries and long lasting pain but that may, i say MAY, mostly have to do with the surgeon.  what type of cancer did they find, did it begin in the pancreas and spread as mine did, what treatment are you on (i am taking lanreotide and it has contained the liver cancer and pancreas cancer has not resurfaced), and any other information you wish to share: i understand if you don't want to give the details.  diet is a big thing, i avoid fatty foods, dairy, and high fiber and that helps quite a bit with indigestion.  take care

RE: Post Whipple Surgery - Pain

by Karenhuffman on Tue Feb 04, 2020 02:06 PM

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I just had my Whipple in Oct. 2019. I’m doing better but still recovering. I get this horrible pain in the middle of my chest that will wake me up at night. It’s so intense I can’t breath normally or move! So you’re not alone! I was fearful it was my heart but I’ve had it happen about five times now and it comes out of the blue. Mine just started about three months after surgery. I’m going to try the gas x strips and see if that helps but sometimes I eat very little and it wakes me in the middle of the night. If anyone’s Surgeon comes up with an answer please post it! Blessings of healing to all on this post?? Karen

RE: Post Whipple Surgery - Pain

by denver88 on Wed Feb 05, 2020 01:48 AM

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I would seek out a second opinion, get a scan, as someone mentioned it could be a problem with the surgery.  i never experienced any pain, credit that to the surgeon, luck and maybe i just healed well.  also could be severe gerd? do seek out another opinion as your surgeon will never admit fault

RE: Post Whipple Surgery - Pain

by LupeCruz on Wed Feb 05, 2020 09:25 PM

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Hi Karen,

My husband had shortness of breath and chest pain after surgery (no whipple, had pancreas tail removed, spleen and 17 lymph nodes)...turns out he developed a blood clot in his lung.  Dr. prescribed blood thinner.  

RE: Post Whipple Surgery - Pain

by susanmac on Sat May 02, 2020 05:14 AM

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I did not have whipple but had open Pancreatectomy and splenectomy..  I have experienced a lot of abdominal pain since surgery but the CT scans have never shown anything that wasn't "normal" They do show a lot of scar tissue...which i think is a culprit...also gas. 

Sometimes its my sternum (feels like my chest/ heart)  and other times its my ribs or area around belly button...sometimes its dull and sometimes its sharp.   I find Gas X helps maybe 70pct of the time.   Othertimes i use lidocaine patches (can get at drugstore)  and last ditch is my oxycodone.   Good luck.   

RE: Post Whipple Surgery - Pain

by PhilipJax on Thu Feb 18, 2021 02:47 AM

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