Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

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Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by maxxschiken on Thu May 23, 2013 12:01 AM

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Post to give those with this particular immediate death sentence prognosis HOPE. In less than 2 months, my wife will be 2 years post diagnosis and 12 months post stopping all chemotherapy with no evidence of new or progressive metastatic disease and no tumor recurrence. Only treatment was Folfirinox from August 2011 to June 2012. Currently working out at the local fitness center 5 days a week 3 hours per day doing cardiovascular, strength endurance and weight lift training and living life symptom free.

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by Cancerkin on Thu May 23, 2013 12:29 PM

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Same here...my dad diagnosed in July 2011 ...had 6 cycles of chemo (gemcetabine and cisplatin).....and den traceva for 3 months...no treatment since jan 2012... Only ayurvedic medicines and diet changes and healthy living....last scan in feb 2013 showed liver mets almost gone ( on diagnoses der wer many in both lobes as big as 4 Cms) ...pancreatic tumour shrunk to 1.5* 0.8 cms ( 7* 5 Cms on diagnoses)...my dad leads a very active life...he has been working full tym after the first chemo cycle...he wud have his chemo at the day care...it wud take about 5 hours and den go to work...never lost any hair...and never had any side effects apart from a mouth ulcer during the last cycle...in fact chemo made him more active...now it's been 1 and half years since stopping all conventional treatments....and we continue to live life normally...most days cancer is not even mentioned...cheers to life

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by ViolinCyndee on Wed May 29, 2013 02:57 AM

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Very inspiring! 

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by maxxschiken on Wed May 29, 2013 08:47 AM

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On May 29, 2013 2:57 AM ViolinCyndee wrote:

Very inspiring! 

Cyndee...  Annie had the pain and all the symptoms as well at diagnosis and for a few months after while her body was acclimating to the cocktail of drugs in folfirinox.  It was so hard to watch her go thru the pain and suffering during those early months of chemotherapy but by God's Grace and Mercy all the pain vanished after about 4 treatments of chemo.  This gave her the sense and security of knowing and feeling the cancer was responding to the treatments.  I hope your husband recovers from the current obstacles with his stroke so he can begin treatment asap.  Encourage him with stories of HOPE like ours.

My wife reminds me everyday that despite being symptom free with no evidence of disease and not having had any treatment for almost a year, her begging and pleading with God has only become stronger and stronger with each and every passing day.  We have always believed this one thing from the start and that is health professionals can dish out the diagnosis/prognosis but they are not in-charge of it, they can not control it and they can not tell you how long you have left in this life.  There is only one Person in charge and He is the Master Physician.

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by randr2210 on Wed May 29, 2013 01:46 PM

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On May 29, 2013 8:47 AM maxxschiken wrote:

On May 29, 2013 2:57 AM ViolinCyndee wrote:

Very inspiring! 

Cyndee...  Annie had the pain and all the symptoms as well at diagnosis and for a few months after while her body was acclimating to the cocktail of drugs in folfirinox.  It was so hard to watch her go thru the pain and suffering during those early months of chemotherapy but by God's Grace and Mercy all the pain vanished after about 4 treatments of chemo.  This gave her the sense and security of knowing and feeling the cancer was responding to the treatments.  I hope your husband recovers from the current obstacles with his stroke so he can begin treatment asap.  Encourage him with stories of HOPE like ours.

My wife reminds me everyday that despite being symptom free with no evidence of disease and not having had any treatment for almost a year, her begging and pleading with God has only become stronger and stronger with each and every passing day.  We have always believed this one thing from the start and that is health professionals can dish out the diagnosis/prognosis but they are not in-charge of it, they can not control it and they can not tell you how long you have left in this life.  There is only one Person in charge and He is the Master Physician.

Amen to that!  There is hope for all of us.  Stories like this give us the inspiration to keep fighting to win over this disease!

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by Jennifer2308 on Thu Jun 20, 2013 10:49 AM

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Hi

I am a very active 41 y.o. nurse in NYC. I was diagnosed with stage 4 pan can with mets to the liver this week. I need all the encouraging stories I can find. Up until this diagnosis I was completely healthy. I excerise 3 times a week and work FT as an RN in a busy ER (that is a work-out). This is a shock & I desperately need stories of people who survived and how did they do it? 

Thank you. 

Jennifer

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by maxxschiken on Thu Jun 20, 2013 01:08 PM

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On Jun 20, 2013 10:49 AM Jennifer2308 wrote:

Hi

I am a very active 41 y.o. nurse in NYC. I was diagnosed with stage 4 pan can with mets to the liver this week. I need all the encouraging stories I can find. Up until this diagnosis I was completely healthy. I excerise 3 times a week and work FT as an RN in a busy ER (that is a work-out). This is a shock & I desperately need stories of people who survived and how did they do it? 

Thank you. 

Jennifer

Hi Jennifer,

Please read everything I've posted here under my profile.  It will take you all the way back to July 2011 when Annie was first diagnosed with inoperable stage 4 adenocarcinoma pancreatic cancer with metastisis to her liver.  She has been in remission since June 2012, no meds whatsoever.  She is working out 2-3 hours daily at the fitness center doing cardiovascular, strength endurance and weightlift training sometimes 6 days a week since last year in December!

Also you can search my posts atwww.cancerforums.netund er "hiyasofsj" and also under the pancreatic blog at John Hopkins blog site where I post under JeffBhttp://pds17.pathology.jhmi.edu/N/n.web?EP=N&URL=/MCGI/SEND1^WEBUTLTY(199,8)/601402910

There is HOPE!

JeffB

 

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by maxxschiken on Thu Jun 20, 2013 01:09 PM

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On Jun 20, 2013 1:08 PM maxxschiken wrote:

On Jun 20, 2013 10:49 AM Jennifer2308 wrote:

Hi

I am a very active 41 y.o. nurse in NYC. I was diagnosed with stage 4 pan can with mets to the liver this week. I need all the encouraging stories I can find. Up until this diagnosis I was completely healthy. I excerise 3 times a week and work FT as an RN in a busy ER (that is a work-out). This is a shock & I desperately need stories of people who survived and how did they do it? 

Thank you. 

Jennifer

Hi Jennifer,

Please read everything I've posted here under my profile.  It will take you all the way back to July 2011 when Annie was first diagnosed with inoperable stage 4 adenocarcinoma pancreatic cancer with metastisis to her liver.  She has been in remission since June 2012, no meds whatsoever.  She is working out 2-3 hours daily at the fitness center doing cardiovascular, strength endurance and weightlift training sometimes 6 days a week since last year in December!

Also you can search my posts atwww.cancerforums.netund "" target="_blank" rel="nofollow">http://atwww.cancerforums.netund " target="_blank" rel="nofollow">atwww.cancerforums.netund er "hiyasofsj" and also under the pancreatic blog at John Hopkins blog site where I post under JeffBhttp://pds17.pathology.jhmi.edu/N/n.web?EP=N&URL=/MCGI/SEND1^WEBUTLTY(199,8)/601402910

There is HOPE!

JeffB

 

Sorry the link to John Hopkins got connected to my name.

http://pds17.pathology.jhmi.edu/N/n.web?EP=N&URL=/MCGI/SEND1^WEBUTLTY(199,8)/601402910

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by TessL on Fri Jun 21, 2013 09:58 AM

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Amen!!!! This story/post has given me lots of hope.....I too believe it is our faith tha brings us through all of these journeys. God Bless and keep you in his favor as you continue to live a productive life! Tess

RE: Longest survivor of INOPERABLE stage 4 adenocarcinoma pancreatic cancer with metastisis to the liver

by cb531 on Fri Jun 21, 2013 03:58 PM

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On Jun 21, 2013 9:58 AM TessL wrote:

Amen!!!! This story/post has given me lots of hope.....I too believe it is our faith tha brings us through all of these journeys. God Bless and keep you in his favor as you continue to live a productive life! Tess

Tess,

I don't know were you live but find the cancer treatment centers they have the latest treatments plus they help with the mind and sole.

Fight girl fight.

Cathy

 

Wondering thought where is the cancer on the panceas and what were your symptoms,

Thanks God bless!

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