My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

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RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by jummpin on Tue Apr 29, 2014 11:07 AM

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I was diagnosed Feb 7 of this year. my doctorgave me the chose of radiation first but also said if it didnt get rid of the cancer they would still have to do the surgeory. My cancer is in my mouth too it was discovered by my dentist. Iwent in with a bad tooth so i thought. He sent me to an oral surgeon. Who sent me to my first ENT who took a pet scan. And decieded this was to much for him. And sent me to Siteman cancer center in the STLon March 10th i had my first surgeory. It was alot 14 hours on the table and then 1 more 10 days later but minor compaired to the first one. I dont no if this helps or not if you'd like more info on mine let me no i dont really have anyone to talk with. thanks and good luck.

John

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Dlynn1210 on Tue Apr 29, 2014 11:13 AM

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On Apr 29, 2014 11:07 AM jummpin wrote:

I was diagnosed Feb 7 of this year. my doctorgave me the chose of radiation first but also said if it didnt get rid of the cancer they would still have to do the surgeory. My cancer is in my mouth too it was discovered by my dentist. Iwent in with a bad tooth so i thought. He sent me to an oral surgeon. Who sent me to my first ENT who took a pet scan. And decieded this was to much for him. And sent me to Siteman cancer center in the STLon March 10th i had my first surgeory. It was alot 14 hours on the table and then 1 more 10 days later but minor compaired to the first one. I dont no if this helps or not if you'd like more info on mine let me no i dont really have anyone to talk with. thanks and good luck.

John

I had tonsil cancer which is very different from your cancer but my dentist missed mine. Two months later my ENT advised me to find another dentist which I did. Sitemann is an excellent hospital as I have a very close friend being treated there. My oncologist at CTCA even said it was one of the best. You might want to start a new blog and would find many with your exact cancer under head and neck cancer section. Diana

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by caroline4 on Tue Apr 29, 2014 11:22 AM

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On Apr 29, 2014 11:13 AM Dlynn1210 wrote:

On Apr 29, 2014 11:07 AM jummpin wrote:

I was diagnosed Feb 7 of this year. my doctorgave me the chose of radiation first but also said if it didnt get rid of the cancer they would still have to do the surgeory. My cancer is in my mouth too it was discovered by my dentist. Iwent in with a bad tooth so i thought. He sent me to an oral surgeon. Who sent me to my first ENT who took a pet scan. And decieded this was to much for him. And sent me to Siteman cancer center in the STLon March 10th i had my first surgeory. It was alot 14 hours on the table and then 1 more 10 days later but minor compaired to the first one. I dont no if this helps or not if you'd like more info on mine let me no i dont really have anyone to talk with. thanks and good luck.

John

I had tonsil cancer which is very different from your cancer but my dentist missed mine. Two months later my ENT advised me to find another dentist which I did. Sitemann is an excellent hospital as I have a very close friend being treated there. My oncologist at CTCA even said it was one of the best. You might want to start a new blog and would find many with your exact cancer under head and neck cancer section. Diana

John - very good advice from Diana - Lots of people to talk to here too!  Andrea

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Mercy61 on Wed Apr 30, 2014 03:00 AM

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John----my husband was diagnosed with tonsil cancer in March of 2012. Our internist found it. He sent Duane to see an ENT Who confirmed that it was tonsil cancer. He then referred us to a radiation.oncolo gist. Duane had a PET scan. All of this happened within 6 days. We were told that his mouth lit up. He then had 6 weeks of radiation . It was a difficult journey but Duane followed their instructions and he is doing very well. He did not need chemotherapy as their was no lymph node involvement. He continues to see his ENT doctor and his radiation.oncolo gist. You have found your way to Cancer Compass. This is a great site for people with cancer or those helping someone with cancer. On this site find the section for Head and Neck. The people who respond to the questions or just the feelings that are expressed will do so with a willingness to help and sincere appreciation of your situation. Good luck and we will keep you close in our prayers. Duane and Paula

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Sdurnell on Wed Apr 30, 2014 05:21 AM

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Diana,

Cancer cells don't actually rush toward the radioactive glucose.  Rather, cells with high metabolic activity, like cancer, utilize larger quantities of the isotope than normal cells and glow in whatever place they find themselves.  You are required to eat a low-carb diet before, and then to fast, so that the only glucose that shows up on the scan is the injected radioactive type.

Hope all is going well with you!

Susan

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by cherub_babe on Fri May 02, 2014 05:30 AM

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HI I am so sorry to hear, My hubby as well was diagnosed with the same, stage 4  ithis feb2014, and we just finished up 35 radiation treamnets, and 2 chemo treamnets and  the doctors are  very confident, in their treaments, not only that we  just had to  have a peg tube, put in due to not  be able to  eat  nor drink, and the surgeon, who knocked him out to  go down his throat and  out thru his belly, said trust me theres is no cancer  living in there, from what  seen with  the scope going down, everything is burned up in his throat,  sorry to say but looks like raw hamburgh now, so i would def get another  opinion, cuz stage  4 in head and neck cancer is way different than others, and if it has spread to lymp nodes nor blood stream yet  then why are they so afraid, you need to find a good cancer treament, their are many and so wonderful, and  hopeful, as they have been beat this bad disease alot more easier than before, I wish you the best, if you  ever need to talk feel free :) Darlene

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by cherub_babe on Fri May 02, 2014 05:32 AM

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HI I am so sorry to hear, My hubby as well was diagnosed with the same, stage 4  ithis feb2014, and we just finished up 35 radiation treamnets, and 2 chemo treamnets and  the doctors are  very confident, in their treaments, not only that we  just had to  have a peg tube, put in due to not  be able to  eat  nor drink, and the surgeon, who knocked him out to  go down his throat and  out thru his belly, said trust me theres is no cancer  living in there, from what  seen with  the scope going down, everything is burned up in his throat,  sorry to say but looks like raw hamburgh now, so i would def get another  opinion, cuz stage  4 in head and neck cancer is way different than others, and if it has spread to lymp nodes nor blood stream yet  then why are they so afraid, you need to find a good cancer treament, their are many and so wonderful, and  hopeful, as they have been beat this bad disease alot more easier than before, I wish you the best, if you  ever need to talk feel free :) Darlene

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Dlynn1210 on Fri May 02, 2014 10:35 AM

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On Apr 30, 2014 5:21 AM Sdurnell wrote:

Diana,

Cancer cells don't actually rush toward the radioactive glucose.  Rather, cells with high metabolic activity, like cancer, utilize larger quantities of the isotope than normal cells and glow in whatever place they find themselves.  You are required to eat a low-carb diet before, and then to fast, so that the only glucose that shows up on the scan is the injected radioactive type.

Hope all is going well with you!

Susan

I was taught in the grad program to speak to people in simplified terms they can understand. Cancer terminology was not part of my everyday speech so is most likely why my oncologist explained it as I just did - and is why I will continue to explain it as such. The area lights up because of increased activity. When we are first diagnosed with cancer we are like a deer in headlights. We are required to take in a lot of information - info that is foreign to most of us. My diet has always been a healthy way of eating which is why as the first oncologist told me that other than having cancer I was in good shape. Seemed like an oxymoron at the time but I later realized what he meant. I was a great weight, had never smoked, and exercised daily. Diet may be a factor for cancer in some people but only one possible factor. My Dad had cancer so I was very aware of doing all I could to prevent it. That didn't work out well for me. Genetics plays its part! Diana

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Dlynn1210 on Fri May 02, 2014 11:27 AM

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On Apr 30, 2014 5:21 AM Sdurnell wrote:

Diana,

Cancer cells don't actually rush toward the radioactive glucose.  Rather, cells with high metabolic activity, like cancer, utilize larger quantities of the isotope than normal cells and glow in whatever place they find themselves.  You are required to eat a low-carb diet before, and then to fast, so that the only glucose that shows up on the scan is the injected radioactive type.

Hope all is going well with you!

Susan

Susan - Physically, I am exhausted having spent the last three weeks clearing out the home I shared with my first husband - getting it ready to sell. Jack passed away almost 19 years ago and I remarried six years ago so have not "lived there" for six years. we have a four car garage in back of our home that we have been using for storage. I have held onto the place for when I came to visit my grandchildren but found myself coming here less and less as they always come to visit us. It was over a year since my last visit, so it was time to sell - past time really. It has been an emotional roller coaster for me - remembering the MANY good times and the bad - Jack's illness and he passed away in our home. As I was driving down the lane away from our place night before last they were playing the song "Jack and Diane" on the radio. Words "life goes on" really hit me and I felt as if Jack was telling me it was okay. A young man (51 is young to me) that Jack knew well - his dad was one of Jack's best friends - made me an offer on our place and I accepted. As he said after we signed the paperwork, we both know his dad and Jack are smiling down as we completed the signing. His dad passed away the year after Jack but his mother still lives next to our place so all is well. It would have been even tougher to sell if it had gone to a stranger but selling it to Mike completes it for me. I'm just over emotional right now - Jack was my best friend and best friends can't be replaced. Diana

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Sdurnell on Fri May 02, 2014 03:53 PM

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Wow, it was your good fortune to find such a wonderful buyer! Maybe that's why you hung on for six years, just so this opportunity could present itself.  I know it was an emotional time, but probably also brought back some great memories as well.  It's good to reexamine the past once in a while, as it was how we get to where we are now, and helps us understand our present situations.

I hope you have time to relax a bit and focus on yourself for a little while.  

All the best,

Susan

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