My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

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RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Mrekau on Sat Aug 15, 2015 07:55 PM

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I'm sorry I did not see that your husband has passed. May God bless you and your family.

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by mollydog1234 on Thu Aug 20, 2015 02:43 PM

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My husband has also said that there is no way he would do the treatments again and after what we have been through and still going through I stand behind that decision 100%.

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Cmel369423 on Thu Aug 20, 2015 05:03 PM

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My husbands tumor was also too large too remove and he had stage 4 squamous cell base of the tongue and tonsil HOV 16 related. He went to Mt Sinai in NYC Doctor Eric Genden. The advised a treatment of Seven weeks radiation and seven doses of eribitux. He finished May 22 and has been slowly recovering from treatment. He complains of a lot of pain and soreness in his throat he has a feeding tube and has put back on 25 of the 50 pounds he lost. As of Aug 10 he had a cat scan and they say the tumor is not showing up anymore. He will have a Pet scan Sept 3 to give us a better look. Please please please don't settle for that answer of there is nothing they can do. this cancer if caused by HPV 16 is highly curable. if you are not in a big city you need to find a place closest to you that can give you a better answer. I wish you all the best in your journey. May god direct you and guide you and give you strength. Christine

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Proxielocks on Mon Aug 24, 2015 02:46 AM

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On Aug 15, 2015 7:55 PM Mrekau wrote:

I'm sorry I did not see that your husband has passed. May God bless you and your family.

May I ask who died on our site here for cancer?

I worry about my husband whom was diagnosed in December 2008 with stay 4 Squamous Cell Carcinoma of the throat. It was  also  UNKNOWN POORLY DIFFERENTIATED CARCINOMA. They did not know where the primary was at that time. It has been 6 1/2 years since his treatments of 35 raditation and 3 treatments of Ciplatin. He said if he had to do it all over again that he would have never taken the treatments. The side effects are aweful. Andy miserable with having so much foam in his mouth/throat. For someone whom loved giving presentations is very hard for him because people have a hard time understanding him. He has become very angry because he says he did not deserve for this to happen. He was an active runner, running 7 miles a day and always ate healthy. He went from 195 pounds to 139 pounds. He is very thin for his height. He had a feeding tube inserted before he started his treatments and had it in for 18 months. He has taken Barium sawllow test, Electricial Smulation Therapy Treatments, speech therapy. And they tell him that he will not get any better it could only get worse. I fix him lots of smoothies because he has a difficult time eating foods. The speech therapist suggested that he goes back on the PEG tub. He always says that he wished that he never taken the radiation and chemo. However, we both know that he would not be here today if he had not taken it. He has become very depressed about lately over it. Doctor appointment next month. I think they might suggust he have a PET scan, it has been a few years since he as has one.

Patty

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Sdurnell on Mon Aug 24, 2015 06:25 AM

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Patty, 

I'm so sorry your husband has not done so well in the years after his treatment.  Has he been evaluated for depression?  Or considered some kind of counseling?

None of us deserved this terrible disease, and I know he didn't either.  The treatment is brutal and there are always lasting effects from it.  I hope he can get some help with coping with his life as it is.  It would be great if he could start to see the benefit to still being here with the rest of us.

All the best,

Susan

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by plines on Wed Aug 26, 2015 06:42 PM

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Get to a University Hospital that has a dedicated "Head and Neck" team.  The best are:

MDAnderson, Houston, TX

Memorial Sloan Kettering, New York, New York

Mayo Clinic, Rochester, MN

UCLA, Los Angeles, CA

Most University Hospitals have "head and neck" surgeons but the other necessary team members are not always at the center but in private practice in the community.  Head and Neck cancers are relatively rare and unfortunately do not get the "attention" that other more common cancers do like breast, colon, prostate, etc.  This is why it is so critical to find a center that really has a passion and program for this.

Best of luck to you.

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by kevincolangelo on Sun Feb 07, 2016 04:09 AM

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On Aug 15, 2013 12:35 AM Sdurnell wrote:

On Aug 14, 2013 6:43 PM carymeback wrote:

I realize that this is over a month after your last post, but I haven't been to this site for awhile.  This message is to give you some help and hope. 

My husband was also diagnosed with Stage 4 squamous cell throat cancer in Feb. of 2009 (he was 66).  Any head & neck cancer is called Stage 4 if it has gone to all the neck lymph glands even if it hasn't spread to the rest of the body.  The cancer was on his right side tonsil area and had been growing for over two years.  It was wrapped around his carotid artery, his jaw bone, paralyzed the right side tongue nerve and was starting into his larynx.  One lymph node was as big as a golfball and the tumor was softball size!  He opted to not have radical surgery and instead had a wonderful oncologist and radiologist (TOMO radiation) who were able to shrink down the tumor with chemo, then the radiation killed off the rest.

It was a very tough time, but as you can see by the date, that it has been 4 years since treatment ended and there is no sign of cancer!  They consider him cured.

In this day and age, you need to be your own advocate: check info on the internet, made phone calls, ask questions, make appointments and seek out others who have gone through this.  Also, really check into natural nutrition and healing remedies, besides having a strong faith in God and prayers--we couldn't have done it without HIM.

Good luck to you and God Bless You.

Most head and neck cancers are detected at stage III or IV because the first symptom noticed is in the lymph nodes.  But it can be either stage, depending on how many nodes are affected and how big they are.  Also, there are cases when it has metastasized beyond the lymph nodes, and these are more serious, but they are rare.  

I had one lymph node affected, >3 cm, so mine was stage III.  But as you and others say, most of these cancers are curable.  We are quite lucky.

Susan


i had tonsil cancer then tonsil removed then chemo and rad - went 2 years and a lump in my neck - cancer near the tonsil area on my neck - had neck disection in november last year 2015 - after swelling went down - in january 3 months later a new lump about 1 inch lower on my neck and again its cancer - I am totally afraid now as a doctor said reoccurances like this usually go to the lungs and if so thats a death sentance of 9 months to live!...I am starting on new chemo next week - and have a pet scan next week to see if its spread - is it common to spread and am I incurable?....if the chemo shrinks it they said then I would have radiation and then possible second neck surgery to remove it again.....Im desperate for answers and people who have had something like this and been cured or lived longer than 9 months even if it does go to lungs?

My stage is Stage 3 T2 N2 M0

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by sjack10337 on Wed Dec 21, 2016 03:01 PM

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On Feb 07, 2016 4:09 AM kevincolangelo wrote:

On Aug 15, 2013 12:35 AM Sdurnell wrote:

On Aug 14, 2013 6:43 PM carymeback wrote:

I realize that this is over a month after your last post, but I haven't been to this site for awhile.  This message is to give you some help and hope. 

My husband was also diagnosed with Stage 4 squamous cell throat cancer in Feb. of 2009 (he was 66).  Any head & neck cancer is called Stage 4 if it has gone to all the neck lymph glands even if it hasn't spread to the rest of the body.  The cancer was on his right side tonsil area and had been growing for over two years.  It was wrapped around his carotid artery, his jaw bone, paralyzed the right side tongue nerve and was starting into his larynx.  One lymph node was as big as a golfball and the tumor was softball size!  He opted to not have radical surgery and instead had a wonderful oncologist and radiologist (TOMO radiation) who were able to shrink down the tumor with chemo, then the radiation killed off the rest.

It was a very tough time, but as you can see by the date, that it has been 4 years since treatment ended and there is no sign of cancer!  They consider him cured.

In this day and age, you need to be your own advocate: check info on the internet, made phone calls, ask questions, make appointments and seek out others who have gone through this.  Also, really check into natural nutrition and healing remedies, besides having a strong faith in God and prayers--we couldn't have done it without HIM.

Good luck to you and God Bless You.

Most head and neck cancers are detected at stage III or IV because the first symptom noticed is in the lymph nodes.  But it can be either stage, depending on how many nodes are affected and how big they are.  Also, there are cases when it has metastasized beyond the lymph nodes, and these are more serious, but they are rare.  

I had one lymph node affected, >3 cm, so mine was stage III.  But as you and others say, most of these cancers are curable.  We are quite lucky.

Susan


i had tonsil cancer then tonsil removed then chemo and rad - went 2 years and a lump in my neck - cancer near the tonsil area on my neck - had neck disection in november last year 2015 - after swelling went down - in january 3 months later a new lump about 1 inch lower on my neck and again its cancer - I am totally afraid now as a doctor said reoccurances like this usually go to the lungs and if so thats a death sentance of 9 months to live!...I am starting on new chemo next week - and have a pet scan next week to see if its spread - is it common to spread and am I incurable?....if the chemo shrinks it they said then I would have radiation and then possible second neck surgery to remove it again.....Im desperate for answers and people who have had something like this and been cured or lived longer than 9 months even if it does go to lungs?

My stage is Stage 3 T2 N2 M0

Kevin, 

Did you ever update your situation here on cancercompass? let me know, I would like to know more about your therapies and outcome. 

Steve

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by Jenpl on Tue Dec 26, 2017 05:36 AM

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On Jun 19, 2013 8:40 PM Loobis123 wrote:

My husband just finished his treatment for stage 4a squamous cell head and neck cancer with unknown primary. He is cancer free at this point and I expect he will stay that way forever!

It is VERY VERY important that you know tht head and neck cancer is staged differently than others. I have been an oncology nurse for 17 years and when I heard my husband had stage 4 disease, I about died. Stage 4 in head and neck is still HIGHLY curable, whereas in other cancers such as breat or colon cancer, with time almost always becomes a death sentence.

Head and neck is almost always a stage 4 because it usually first shows up in the lymph nodes of the neck. While this is considered metastatic disease, it is so curable and it is improtant to remember that!!!

Please please seek a second or third or fourth opinion! My husband went to Seattle and had surgery by a head and neck specialist and then came back home for 6 weeks of chemo and escalated concurrent radiation. The treatment sucked in a nutshell. He couldnt eat, had a peg tube and ended up in the hospital on a morphine pump. All that being said, at this point he has been back to work for 3 weeks now, is eating everything in sight and is feeling better every week! He has mild dry mouth and gets tired by about 4 in the afternoon.....that too will eventually pass.

I wish your husband the best and I strongly encourage you to TREAT THIS FOR THE CURE...he can do it and it is possible!!!

Take care and hang in there....a day at a time!

 

Right now we are half way through treatment and its scarey...so i was very happy to read your write up...my husband hasnt had surgery as it was risky..but in 3 1/2 weeks has lost a total 15kilos..and still losing...I am thinking  this week they might be in a nasel feed...we havent met anyone else with what my husband has in all our visits to the hospital..but just at this moment while searching for answers I saw your story...i pray we have the same out come..we live in Australia 

RE: My Husband Was Just Diagnosed With Squamous Cell Carcinoma Of The Head And Neck Stage 4

by kevincolangelo on Tue Dec 26, 2017 12:52 PM

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Go to another hospital get second opinion I've had it four years
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