HOPE

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HOPE

by cmaries on Wed Apr 20, 2016 07:54 PM

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I am posting to give HOPE to all suffering from EC.  I had last posted before my husbands esophagectomy on 3/10/16.  

Here is his success story...in brief:

12/2014 diagnosed with stage IV esophageal cancer with lymph node involvement...1-1/2 to 2 years to live

Jan/2015 started FOLFOX every two weeks...after 11 treatments stopped due to neuropathy

throughout year CT and PET scans all stable...no new growth, but none gone.

June/2015 started FOLFIRI every two weeks (thru 2/2016..18 treatments)

Jan/2016 had PET scan, endoscopy and CT scans....all clear no cancer shown...LIKE WOW!

Feb/2016 team decided to remove esophagus because Tom is young (53), healthy and lean

March 2016 had esophagectomy and lymph node removal

This week was told by surgeon and oncologist he is cancer free...no chemo needed!!!!!!!!!!!!!!!!!!!!!!!!

16 months have passed and this is a great day!

DON'T LOOSE HOPE...HE NEVER HAS!  Tom is his oncologist first success story for EC!

RE: HOPE

by Shelly64 on Thu Apr 21, 2016 02:51 AM

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What an awesome success story . We needed to hear this. My husband will be going through this surgery sometime in May of this year. He was diagnosed with stage 3. Thank you for sharing.

RE: HOPE

by stevenph on Sat Apr 23, 2016 12:17 AM

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I was diagnosed with stage 2 esophageal cancer at Thanksgiving. Went thru 6 weeks of chemo and radiation, 5 weeks to recoup and then surgery March 9. I am back to work full time and cancer free. God bless, pray for your medical staff. If you have questions, please ask. Steve

RE: HOPE

by Sherry13 on Sat Apr 30, 2016 02:25 AM

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I sure. Need to hear that! I was told I'd be on folfox and Herceptin for life. Today I wished I would just die and get it over with. Guess I will wait awhile before going on hospice.

RE: HOPE

by dapitre1 on Mon Jun 13, 2016 05:33 PM

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wow that is such great news. My father age 73 was diagnosed in March with stage 2 esophageal cancer and finished treatment and is scheduled to have surgery end of June. I just keep hoping he wont have a bad experience. He is a strong man and went through his chemo/radiation therapy like a champ. I just keep reading all stories about this surgery. His cancer team is amazing and keep letting us know all will be ok although it will be a rough road. Im glad i found a this site to see how other experiences are. Thank You

RE: HOPE

by Shelly64 on Wed Jun 15, 2016 02:26 AM

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My husband is still in the hospital recovering from this surgery . It hasn't been easy but after 8 days he is doing much better . 18 lymph nodes were removed and had no cancer. His tumor had shrunk 95%. The 5% that was left did have active cancer cells so thank god he got it taken out . It will be a slow recovery but he is strong and will do well. Shelly

RE: HOPE

by stevenph on Wed Jun 15, 2016 02:38 AM

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The first 8 days are tough as are some of the next days over the next few weeks. It continues to get easier and better. Help yourself recover by walking as much as you can but also rest when your body tells you to. I am now 3 months out from surgery, working, bike riding, eating well and loving life. God bless!

RE: HOPE

by Shelly64 on Wed Jun 15, 2016 03:33 AM

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Wow good for you that is awesome i hope my husband does as well as you. Do you have to watch what you eat and eat small amounts? Also do you have to sleep elevated? Thank you! Shelly

RE: HOPE

by stevenph on Wed Jun 15, 2016 11:49 AM

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Initially some foods especially ice cream and other sweets did not agree with my body but as time has gone on I can now eat anything including sweets, pizza, steak. As for amounts, that has been far better than I expected. When I first came off of the feeding tube, it seemed about a cup and a half would fill me up. That started to increase after e first couple of weeks. Now I can go to Chick Filet for instance, eat a grilled chicken sandwich and maybe steal a fry or two from my wife and I am fine. I will also say over eating makes me feel very uncomfortable, almost sick so I do watch it. I am 6'6" and my weight has stayed between 225 and 230 for 6 weeks now. As for sleeping, I do have an elevated bed and a 10 inch wedge pillow for when we are on the road and we have traveled a lot. I have also forgotten the wedge pillow and just stacked up a few pillows and slept fine.

RE: HOPE

by Shelly64 on Thu Jun 16, 2016 12:15 PM

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Thank you stevenph your story has inspired us. My husband is doing awesome he gets to go home tomorrow . I hope he continues to live his life as well as you have been able to. Shelly
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