SOS DIPG 10 OLD BOY NEED INFORMATION/ TREATMENT

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SOS DIPG 10 OLD BOY NEED INFORMATION/ TREATMENT

by mariesita on Mon Aug 08, 2016 05:41 PM

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Hello eveyone,

I am new on this forum and I would like to have some informations about treatments agains diffuse intrinsic pontine glioma (DIPG).
In fact, a DIPG has been diagnosed to a little boy of my family in August 2016 and we are trying to revive from the shock and we are also trying to digests all te information available on the net. Please help us to get fast on speed and prepare for the fight. Georgi is 10 years old and so far is diagnosed low stage of DIPG. He has some symptoms as dual vision and headache and paralysis of eye.  Currently no cancer treatment has been performed only diagnosis MRS, MRI and PET/CT

RE: SOS DIPG 10 OLD BOY NEED INFORMATION/ TREATMENT

by mariesita on Mon Aug 08, 2016 06:01 PM

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Please let me know if you've heard about any clinic that could help him. We are from Bulgaria, but we are open for a wordwide treatment. For now, we have reached with Boston children's hospital and waiting for them to give some directions. If you have  some expirience with these hospital, please let me know. :) 

Thanks a lot for your help. God bless you!

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