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Ajtorres12's Recent CancerCompass Activity

  • Ajtorres12 has replied to a post on the message board

    Thank you cindy for the reply, you are right on point. My drs here dont know what to do with me so far. I believe I have had This MPN since 2000, I did not have any.major problems until 2010 when a blood clot in my portal vein caused the death of my small intestines. That's when all my health issues showed up. I will definitely look into the VW. Like I said before ocology wants to put me on some sort of blood thinner...

    August 13, 2018 view post
    • Ajtorres12 has replied to a post on the message board

      Thank you allenH. For your response, I am currently in a limbo state as far as doctors. Stanford liver dept has handed me off the the oncology dept. Oncology wants to put me on blood thinners and try and perform ANOTHERr tips procedure to help relieve the high pressure in my system due to the thick blood. I am also in the care of a nutritionist to help me put some of the 60lbs I lost when they took out my small intes...

      August 12, 2018 view post
      • Ajtorres12 has replied to a post on the message board

        Hello, my name is alex and I was diagnosed with ET a year and a half ago. I have probably had it since 2000 but my GP did not catch it. I had a lump on my left side under my rib cage that felt like it was not allowing food do digest. Doc told me to lay off fried foods and protein shakes. And add some metamucil to my diet. It helped with the the "full" feeling but was only masking the real problem. .fast forward 10 ye...

        August 12, 2018 view post
        • Ajtorres12 has created a new message board discussion

          Anybody have info on jak2 positive mutation. With low platlet counts and low (within standard range) rbc and wbc and hemoglibin hermatacrit values. Im waiting on a bone marrow biopsy results. Possible PV??? Why the low counts if the bone marrow is always "on"??? 

          January 26, 2018 view discussion
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