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CoriM's Message Board Messages

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My husband's brain met was discovered just before he was to start chemo.  He had 16 whole brain treatments.  The only side effect he had was a horrid burn, said it was like getting one sunburn on top of another.  His head and face were a bright red for about two weeks after the treatment was done.  Funny, but he didn't have any pain, just incredible itching that drove him almost crazy.  Finally a nurse gave him some Biofine cream and that helped tremendously.  He lost all hair in the area where the mask was on his face, and that has not come back a year later.  I have since heard that a product called "Jean's cream" does a better job of stopping the itching, but evidently it's not available in many stores.  You should be able to get the Biofine samples from your doctor.  Vital to wash off the dead skin cells every day with just warm water on a wash cloth.. no soap as that will irritate it more.  I'll put your hubby in my prayers and you as well.  God bless you both.  Cori

 

MMsurvivor, please read my response to Shell-Dean because it's intended for you also.  I forgot to say that I did call and tell the triage nurse how terrible the burns were and that his Rad. Onco refused to give him an rx.   She said she would call one in immediately and we could go pick some samples up if we wanted, but it is too far to go unless absolutely necessary.  70 miles a day uses a lot of gas and we're saving every penny for the expenses not covered by insurance. Thank you for spurring me on to demand some help!  God bless you.
As I said in my previous post, today is the last day, and the only one targeting the tumor.  The burns are from whole brain radiation.  However, we got his latest MRI result back and the mass is the same size.  We do understand that it may take time.  Thank you for answering me!  God bless you.

Thank you SO much.  I will order the cream right away.  Finally yesterday at the chemo clinic a girl gave us two samples of Biafine topical emulsion.  He's saving it for after his final targeted radiation this afternoon (Tuesday).  They are so wonderful in that unit and we are so very glad to get away from the Radiation clinic.   Sorry for venting so much in my "question", but your answer made me feel better.  God bless you too, and I will be praying for your husband also.  Sounds like we are on the same journey right now.

Feel free to email me privately if you'd like.  (Not everyone, please)

My husband has Stage IV Lung Cancer..  They were unable to start Chemo because they found a brain tumor metastasis.  This Cancer Institute sounded very good at first, telling us we'd have a team of Radiation and Chemo Oncologists, Nurses, etc. and that they would meet every two weeks to go over treatment plans.  They were going to start Andy on Radiation, but then they got the results of more tests that showed Late Stage, Terminal Lung Cancer and said he would have to have Chemo first. The day we went for his first Chemo, they said he'd have to have Radiation first, because of a brain metastasis.  We've heard nothing from any "team" and his Radiation Oncologist just flies down the hallway and can rarely be caught to answer a question.  Andy just completed 15 whole brain radiation therapy treatments.  He has to go back in 4 days for a "Mega blast" to the tumor itself.  His head is bright cherry red, with multiple deep burns with scabs, open sores behind his ears and on a few spots on his head and face.  Yesterday he caught the doctor long enough to tell him his head hurt and itched severely.  The doctor told him to use 1/2% Hydrocortisone cream on it.  It is not helping at all.  Does anyone know anything that would help his poor head?
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About CoriM

Caregiver
Lung Cancer

66 yr old wife, with own chronic illness, caring for husband with advanced metastatic lung cancer. Also interested in breast cancer things because niece has it.

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