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IndianaDaughter's Recent CancerCompass Activity

  • IndianaDaughter has replied to a post on the message board

    She can't stomach any type of egg right now. :(

    August 26, 2018 view post
    • IndianaDaughter has created a new message board discussion

      I have researched this sign effect but I am not finding anything. My mom a stage IV recently diagnosed with pancreatic caner on her second round of Gemcitabine (Gemzar) and Abraxane treatment (three Mondays in a row and then a week off). Her weight is at 90 pounds and her normal weight is 125. She can’t seem to eat much besides fruit that doesn't cause an oily, greasy taste feeling in her mouth. She has tried...

      August 25, 2018 view discussion
      • IndianaDaughter has replied to a post on the message board

        My mom hasn't found any relief this month with any of the four different items below that I purchased and she tried. 250 mg gummies: https://cbdonly.com/products/cbd-gummies-by-paradise-candy 100 mg oil: https://buycdx.net/ CDX CBD oil 100 mg: http://cdxcbd.net/ 750 mg: http://hempworx.com/images/hw2018/labels/750Peppermint.png?1 http://hempworx.com/hemp-worx-products Just wanted to share.

        August 25, 2018 view post
        • IndianaDaughter has replied to a post on the message board

          Thank you for your prayers. I will say prayers for you as well. My mom's left rib is really killing her and her stool was light brown as well. For my mom the IU Oncology team showed us the exray and said the rib pain is because of where the tail of the pancreas is. Her My CT Scan, ultrasounds and MRI and labwork was all normal as well. But the pain and weight loss was not. St. Louis is a big city -- can you as someon...

          July 26, 2018 view post
          • IndianaDaughter has replied to a post on the message board

            You said: Don’t know where to go? Go to IU Health Hospital in Indy - or any big city ER and check yourself in. Tell them you are having pain and you need a CT scan. We tried to do this with my mom as she was frail and lost 35 pounds - my sister and I felt her PCP and Gastro were not doing enough fast enough. The 1st hospital ER was affiliated with her health system - big mistake going there. The ER doctor said...

            July 25, 2018 view post
            • IndianaDaughter has replied to a post on the message board

              I am also sorry to hear your father passed away. Personally, I have reached out to two firms thus far - but it is time consuming. I just heard back from one of them the following day (last week) and then tonight the other once sent me a follow up email wanting to talk further... It is not with the firm I copied and pasted contact info -- but I just wondered how far you have exhausted your search.I skipped my city of...

              July 24, 2018 view post
              • IndianaDaughter has replied to a post on the message board

                Wow! Very disheartening to see your response. I do not know where you are located -- but did you try these guys? Why Should I File A Cancer Misdiagnosis Lawsuit? Because you or your loved one deserved better care. Because families need to know the truth, before it’s too late. Because crippling pain and emotional trauma must be taken seriously. Every month lost to an ineffective treatment is a lifetime ...

                July 24, 2018 view post
                • IndianaDaughter has replied to a post on the message board

                  Also -- Make sure you save everything and get copies of your scans now incase you need them later. They are free. Plus good to show other experts if in case you do find out you have something in the future - at the very least the 2nd opinion team could at least look at the Ex. CT scan from prior to see how fast your (whatever it may be if anything) is progressing. I have learned that one practice ex. IU Health can'...

                  July 24, 2018 view post
                  • IndianaDaughter has replied to a post on the message board

                    Yes. They said everything was normal. Even blood tests -- I haven't analyzed all the blood work from back then to now… because online portals that I have set up for her since getting involved and trying to see what in the heck was going on do not allow me /us/we to see the results from the past just from when I set up the portals and forward. However I can request print outs, etc. but I work full time and in...

                    July 24, 2018 view post
                    • IndianaDaughter has replied to a post on the message board

                      Thank you Diana.

                      July 24, 2018 view post
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                      About IndianaDaughter

                      Caregiver
                      Pancreatic Cancer
                      Chemotherapy, Clinical Trials and Research, Diagnostic Imaging, Emotional Support, Genetics, Image Enhancement, Side Effects

                      My 67-year old mother has been suffering side effects of pancreatic cancer for the past 10 months. Unfortunately her pain was misdiagnosed as a mild case of diverticulosis, she was put on a high fiber diet and given Protoxin. After continued hunt for the truth, a loss of 30 pounds, countless CT scans, MRIs, & ultrasounds we took her 150 miles south to IU Health Indy were they in less than 12 hours diagnosed her with stage IV Metastatic Pancreatic Adenocarcinoma,(L) renal vein thrombosis and (L) ovarian vein
                      thrombosis.

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