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Sdurnell's Recent CancerCompass Activity

  • Sdurnell has replied to a post on the message board

    This site seems very dormant these days.  I'd like to invite you all over to the Inspire H&N group, which normally has posts daily. I'm not too handy with these sites, but this is how I reach it: https://www.inspire.com/groups/head-and-neck-cancer-alliance/ All the best to you all. Susan

    August 24 at 7:03 PM view post
    • Sdurnell has replied to a post on the message board

      William, It sounds somewhat like "post nasal drip," especially as you say it's fixed by coughing something up.  You might try medications designed to help with this.  Might not be a radiation side effect at all.  I have allergies, especially this time of year, and experience something similar with them. All the best, Susan

      May 21 at 1:23 AM view post
      • Sdurnell has replied to a post on the message board

        William, At 9 years out, I sometimes cough, usually when I get food stuck in my throat.  Does that ever happen to you?  My throat is narrower now because of the radiation.  It can also happen if you aspirate food.  Have you had a swallow study recently?  Those are the only times I really cough these days. Congratulations on getting enough saliva to get by.  I have found that mine keep...

        May 16 at 2:33 AM view post
        • Sdurnell has replied to a post on the message board

          CeeDee, I'm so sorry I didn't get back to you right away.  We have been out of the country, in Peru on a small cruise boat doing birdwatching on the Amazon and its tributaries.  That might tell you a bit about my quality of life nine years out of treatment.  It's very good.  I do have a few eating issues, but not any that have prevented me from regaining a little too much weight. I would do the ...

          February 25 at 7:19 AM view post
          • Sdurnell has replied to a post on the message board

            Tig If things don't pick up here, try going to Inspire head and neck cancer alliance.  More activity there. Susan

            January 28 at 4:12 AM view post
            • Sdurnell has replied to a post on the message board

              Johnsonly1, I am the Susan PopPop referred to in his post. I also had my throat close up completely, which was a side effect that we didn't anticipate, even though I made sure I was very well informed about treatment and its effects.  We are all different and no one can predict how this barbaric (but often succesful!) treatment will effect any one of us. I have had around 20 dilations over the last 8 years or ...

              January 27 at 11:27 PM view post
              • Sdurnell has replied to a post on the message board

                Hi Fiona. This is a site for head and neck cancer, primarily squamous cell carcinoma.  You might try the bladder cancer section of this site, or you could go to Inspire and try there. Best of luck to you. Susan

                December 19 at 1:15 AM view post
                • Sdurnell has replied to a post on the message board

                  Patty, I am so sorry about your husband and that no one is willing to help him.  I was diagnosed the monthe before he was, and am doing fine now.  This think is so unpredictable.   I have a few thoughts.  Gaining weight would really help him probably.  Is he using a formula in his tube?  If so, he might be able to get one that has more calories in it to help with the weight. ...

                  December 08 at 9:15 PM view post
                  • Sdurnell has replied to a post on the message board

                    Hey, that's great that you are more than three years out.  If your tumor(s) was HPV related, then you are most likely cured, since you have passed that magical 2-year mark. Congratulations, and I hope things continue to go well for you. Susan

                    November 05, 2019 view post
                    • Sdurnell has replied to a post on the message board

                      The thing is that this group used to be quite active, and there hasn't been anything here for quite a while.  Susan

                      November 02, 2019 view post
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                      About Sdurnell

                      Patient
                      Head and Neck Cancer, Squamous Cell Cancer, Throat Cancer
                      Cancer Nutrition, Radiation

                      I have squamous cell cancer. A neck dissection showed one node positive (<3 cm.) and encapsulated. No primary has been found. I have no risk factors for this condition. Day after tomorrow I go in to have all my teeth pulled (my teeth are OK, but gums not so great). I will need five weeks of radiation, starting as soon as my mouth heals, and have been told not to lose any weight, even though I'm about 15 # overweight. Everyone is hoping I can avoid a feeding tube, but I'm not confident I can eat enough, especially without any teeth. I'd really like advice and support for this.

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